BJJ (6/17/2009 6:00pm)
Back on the mats again. Tonight was my third night back since returning from my surgery and that whole ordeal. I felt terrific. I survived the warm-ups with only the jumping push-ups being passed over.
Drills tonight revolved around learning the Darce choke. I have seen this one performed many a time but this was my first opportunity to learn it. After a bit of awkward fumbling my training partner for the night and I started to get it down pretty well.
When it came time to roll, I stuck to the plan and started to sit out. It wasn't until one of the other guys got hurt that I started. I got the left-behind partner of the guy who had to limp off the mats, told him I can't really roll but I can work technique. He said he wanted to work on guard passes, so that is how we started. My Guard Was Awesome tonight. Probably one of the best guard nights ever. Not only was I happy to be doing well, I was also glad that I was able to help this other guy with something he needed to improve.
I swept a few times, didn't really go for submissions because I was trying to help him learn. I was able to control his grips and posture, off-balance him at will, and just generally look like I knew what I was doing. Good night.
Next I rolled at "50%" with Kim. He has always been tough for me. He was going immediately to spider guard, which always gives me trouble, but I did well. Twice I was able to pass, and as in the earlier session my guard was solid. I didn't submit, but I did not get submitted either.
For my third night back, pretty awesome. I am just taking it a day at a time, knowing that it is a journey.
Wednesday, June 17, 2009
Slacker!!!
So I'm finally back in action and here I am not updating this blog. Shame on me. Perhaps I need more stuff to complain about in order to make me write. Or perhaps I have just been too darn busy letting life get in the way again. Or maybe, when I have time to write, I use it for catching up on rest instead.
Whatever the reason, here I am. Writing now and that is what matters. What do I have to say? Since my last post I have done quite a bit and some of it is even Jiu Jitsu related. Some of it is just the same ol' stuff, some of it is…..the MUNDIALS!!!
I know I have missed the appropriate window for reporting on the Mundials and by now everyone knows what I do, Roger is a cyborg. I attended both Saturday and Sunday during which time I ran around snapping photos for that friend to us all, Caleb from The Fightworks Podcast. Upon arrival he dispatched me with the still camera and Bruce with the video camera and off we went. Despite some technical difficulties, I was still able to get some great shots. One of my photos that made the website was the culmination of semi-strategic positioning and a whole bunch of luck. On Sunday Dr. Evil and I were sitting among the boisterous Alliance team and when Sergio Moraes beat "Finfou" and leapt up into the Alliance camp, froze time, and allowed me to snap this shot.
The photo appeared on the FWPC and I'm just glad that I was able to help Caleb out and give him a decent shot. Yes, that bald head at the bottom is Fabio Gurgel.
On Sunday morning there was also the chance to get together with Caleb and other members of The Mighty 600,000. We had a great time sitting around, talking Jiu Jitsu and pretty much expecting Roger to win it all, as he did. I am happy to announce that my good friend Dr. Evil was able to make it down. Here is a shot of us, with Caleb, at the coffee get together before Sunday's action.
Dr. Evil is the one on the left who looks like Dr. Evil, I'm in the center and Caleb is on the right. Good times guys, thanks a lot. Stay tuned, more Jiu Jitsu content to come. I'm finally back to the mats and anxious to make improvements and let everyone know how its going!
Thursday, June 4, 2009
"Light" Rolling
BJJ (6/3/2009 6:00Pm)
On Wednesday I went back for more. Like a crackhead who's been in rehab for 5 months, I could not resist getting back to my drug of choice just as soon as I could. This is only my second class back and I did them on consecutive days. What did I say about being a crackhead?
I was really feeling my out of shapedness during the warm-ups. Unlike the previous day when I actually felt pretty well, this time I was a pile of goo (only less firm). By the end I was melting. The lack of cardio is difficult to deal with but I did not expect the total loss in functional strength. I know both will come back with time so I am actively working on not getting frustrated, so far so....ok.
After the warm-ups Fritz yelled "get some water, put your mouthpieces in" which means its time to roll. Luckily Mike was also suffering from a bad case of MPH having hurt his toe a few days before. Since neither of us were able to actually roll, we worked together. We started by working some technique from my guard until he said "lets just go super light and see how we do". That was easy for him to say but so hard for me to do.
We did a "light roll" for the rest of the class with me needing to pause every so often to catch my breath. I only managed one guard pass, one sweep and one submission (ezekiel choke). I had never felt that spent after training. I was glad that we were slightly pushing and that I was able to keep my heart working the entire time. I knew that with every session I would be improving and I would never feel this bad again.
Taking Thursday off, training Friday then its off to the Mundials (as a spectator) for Saturday and Sunday.
On Wednesday I went back for more. Like a crackhead who's been in rehab for 5 months, I could not resist getting back to my drug of choice just as soon as I could. This is only my second class back and I did them on consecutive days. What did I say about being a crackhead?
I was really feeling my out of shapedness during the warm-ups. Unlike the previous day when I actually felt pretty well, this time I was a pile of goo (only less firm). By the end I was melting. The lack of cardio is difficult to deal with but I did not expect the total loss in functional strength. I know both will come back with time so I am actively working on not getting frustrated, so far so....ok.
After the warm-ups Fritz yelled "get some water, put your mouthpieces in" which means its time to roll. Luckily Mike was also suffering from a bad case of MPH having hurt his toe a few days before. Since neither of us were able to actually roll, we worked together. We started by working some technique from my guard until he said "lets just go super light and see how we do". That was easy for him to say but so hard for me to do.
We did a "light roll" for the rest of the class with me needing to pause every so often to catch my breath. I only managed one guard pass, one sweep and one submission (ezekiel choke). I had never felt that spent after training. I was glad that we were slightly pushing and that I was able to keep my heart working the entire time. I knew that with every session I would be improving and I would never feel this bad again.
Taking Thursday off, training Friday then its off to the Mundials (as a spectator) for Saturday and Sunday.
Wednesday, June 3, 2009
Good to be Home
Full circle. Well, this Jiu-Jitsu, maybe its full Triangle! Either way, after 4 Months and 23 days or; 143 days or; 20 weeks or; 3432 hours or; 205,920 minutes or; 12,355,200 seconds, however you count it I made it back to the mats. But who’s counting?
Of course, going into the class I had a bit of apprehension and trepidation. I was worried about how well my heart has actually healed; I was concerned about overdoing it right off the bat. I had an irrational fear in my head that I had forgotten everything. I was nervous that I would be completely and totally out of shape (well some fears do come true).
Packing up my gym bag and getting ready to head to class brought back a familiar feeling. Making the drive to the gym I could not believe that my long, involuntary vacation had come to an end.
Now, since I have been out I have made it a point to stop in now and then. To catch up with the guys, provide status reports on my heart and just to soak up the atmosphere. This time, I arrived with my bag in hand and I was ready to go.
The warm-ups were just as brutal as I remembered. Surprisingly the only one I could not make it thru was our traditional end of warm-up surfer. Other than that I managed to get thru everything else. Now, I didn’t look very good and I was sloppy and slow; but I made it thru.
We drilled standing guard passes, which was a perfect refresher for me. I drilled with Neil and Kris who both made it a point to be there with me on my first night back. Dr. Evil stopped by too but was not able to train as he just had his wisdom teeth pulled and is dealing with that madness. Thanks for the support guys.
When it was time to roll, I stuck to my commitment to not rush back to rolling so I helped a guy who was there for the first time. Upa’ville here we come. Helping him learn the upa escapes was also beneficial for me because it allowed me to ease right back into the rhythm and work on some fundamentals and positions.
What a great night. I am horribly out of shape and have a long way to go to get back to “normal” but I made it thru and did pretty well. I’M BACK!!! I want to thank everyone for your support and well-wishes during this tumultuous time. This community we have is phenomenal I am proud to be part of it.
Of course, going into the class I had a bit of apprehension and trepidation. I was worried about how well my heart has actually healed; I was concerned about overdoing it right off the bat. I had an irrational fear in my head that I had forgotten everything. I was nervous that I would be completely and totally out of shape (well some fears do come true).
Packing up my gym bag and getting ready to head to class brought back a familiar feeling. Making the drive to the gym I could not believe that my long, involuntary vacation had come to an end.
Now, since I have been out I have made it a point to stop in now and then. To catch up with the guys, provide status reports on my heart and just to soak up the atmosphere. This time, I arrived with my bag in hand and I was ready to go.
The warm-ups were just as brutal as I remembered. Surprisingly the only one I could not make it thru was our traditional end of warm-up surfer. Other than that I managed to get thru everything else. Now, I didn’t look very good and I was sloppy and slow; but I made it thru.
We drilled standing guard passes, which was a perfect refresher for me. I drilled with Neil and Kris who both made it a point to be there with me on my first night back. Dr. Evil stopped by too but was not able to train as he just had his wisdom teeth pulled and is dealing with that madness. Thanks for the support guys.
When it was time to roll, I stuck to my commitment to not rush back to rolling so I helped a guy who was there for the first time. Upa’ville here we come. Helping him learn the upa escapes was also beneficial for me because it allowed me to ease right back into the rhythm and work on some fundamentals and positions.
What a great night. I am horribly out of shape and have a long way to go to get back to “normal” but I made it thru and did pretty well. I’M BACK!!! I want to thank everyone for your support and well-wishes during this tumultuous time. This community we have is phenomenal I am proud to be part of it.
Saturday, May 30, 2009
Tiny Bubbles.....
Wednesday, 27 May was my one month follow-up appointment to see how the PFO closure was healing, to make sure the device is working as it should and to find out whats next. I was hoping for good news, what I got was so much more.
I showed up to the fifth floor of the south tower at Cedars Sinai about an hour and a half early. I guess that I was feeling excited and apprehensive at the same time. Before seeing the Doctor I was having an echocardiogram with bubble study. Basically, it is a normal echocardiogram (ultrasound of the heart) but at one point they inject a bunch of saline bubbles into a vein and watch them flood into the right atrium. If the surgery worked as it was supposed to, all of the bubbles would stay in the right atrium and not shoot across into the left thru the newly closed PFO.
I have become somewhat used to having echos done now. I know what images they are going to grab and typically in what order. I even know how to stay comfortable in the awkward positions. So I knew when it was over and time for the bubbles. A nurse had already come in before the test and installed an IV line in my arm but for the actual injection of the bubbles the technician called the Fellow who was on duty.
The tech had a pretty picture of my left and right atria on the screen (the right one appears on the left of the screen.....go figure). And in coordination with the fellow, the bubbles were injected rapidly. On the screen the right atrium started to show up bright white as the bubbles rushed in. The left atrium was remarkably empty. Neither myself, the tech nor the Fellow could see any bubbles pass thru the PFO. The surgery worked as it should have.
With a new sense of relief I left the echo lab and made my way to the Doctor's office. I felt like a kid running home to see a parent with a good report card (not that I have ever known THAT feeling). I couldn't wait to hear what Dr. Kar would say. Most of my apprehensiveness had now been replaced with pure excitement.
At Dr. Kar's office the wait felt intolerable. It wasn't very long but I was dying to get in to see him. Asma came and took me to the room and went over how I was doing. She asked if I had received her reply to my email that told me basically no increased physical activity until at least a month after surgery. I said I did receive it and we laughed that I knew the answer to the question before I had asked it....guilty.
Dr. Kar came in and was as excited as he is every time I have seen him. He asked how I was feeling and I told him that I was fantastic. He read the echo report and told me that the doctor who read the results had seen a couple of tiny bubbles make it into the left atrium. Dr. Kar told me not to worry about that because first off I had, in his words, "a Huge PFO"; and secondly at the end of six months enough scar tissue should grow over the device so that no bubbles would come thru. But for now, the size and relative amount that passed thru were nothing at all to be concerned about.
Then when the appointment was drawing to a close I asked about my activity level; about what I could or could not do. In one of those moments where one's words were not specifically chosen but they are exactly right he said "you can do anything". How inspiring is that? That's right, I have NO LIMITATIONS now. I committed that upon my return to the mats (probably Tuesday, 2 June) I would take it slowly and not roll for a month or so. The Doctor told me to come see him again at the six month mark and sent me on my way.
I cant begin to describe my appreciation for Dr. Kar, Asma, and the entire team who got me thru this. When one hears that they have a hole in their heart the level of fear is paralyzing. They made it so easy to deal with and as I saw with my own eyes, they fixed it.
When I return to the mats next week, it will have been after about five months off. I last trained on Saturday, 10, January. 2009 will go down as a year where I lost half of it to a couple of strokes, the discovery of a hole in my heart, surgery and finally a mid-year triumphant return.
Stay posted, the return of Jiu Jitsu content is imminent!!!
I showed up to the fifth floor of the south tower at Cedars Sinai about an hour and a half early. I guess that I was feeling excited and apprehensive at the same time. Before seeing the Doctor I was having an echocardiogram with bubble study. Basically, it is a normal echocardiogram (ultrasound of the heart) but at one point they inject a bunch of saline bubbles into a vein and watch them flood into the right atrium. If the surgery worked as it was supposed to, all of the bubbles would stay in the right atrium and not shoot across into the left thru the newly closed PFO.
I have become somewhat used to having echos done now. I know what images they are going to grab and typically in what order. I even know how to stay comfortable in the awkward positions. So I knew when it was over and time for the bubbles. A nurse had already come in before the test and installed an IV line in my arm but for the actual injection of the bubbles the technician called the Fellow who was on duty.
The tech had a pretty picture of my left and right atria on the screen (the right one appears on the left of the screen.....go figure). And in coordination with the fellow, the bubbles were injected rapidly. On the screen the right atrium started to show up bright white as the bubbles rushed in. The left atrium was remarkably empty. Neither myself, the tech nor the Fellow could see any bubbles pass thru the PFO. The surgery worked as it should have.
With a new sense of relief I left the echo lab and made my way to the Doctor's office. I felt like a kid running home to see a parent with a good report card (not that I have ever known THAT feeling). I couldn't wait to hear what Dr. Kar would say. Most of my apprehensiveness had now been replaced with pure excitement.
At Dr. Kar's office the wait felt intolerable. It wasn't very long but I was dying to get in to see him. Asma came and took me to the room and went over how I was doing. She asked if I had received her reply to my email that told me basically no increased physical activity until at least a month after surgery. I said I did receive it and we laughed that I knew the answer to the question before I had asked it....guilty.
Dr. Kar came in and was as excited as he is every time I have seen him. He asked how I was feeling and I told him that I was fantastic. He read the echo report and told me that the doctor who read the results had seen a couple of tiny bubbles make it into the left atrium. Dr. Kar told me not to worry about that because first off I had, in his words, "a Huge PFO"; and secondly at the end of six months enough scar tissue should grow over the device so that no bubbles would come thru. But for now, the size and relative amount that passed thru were nothing at all to be concerned about.
Then when the appointment was drawing to a close I asked about my activity level; about what I could or could not do. In one of those moments where one's words were not specifically chosen but they are exactly right he said "you can do anything". How inspiring is that? That's right, I have NO LIMITATIONS now. I committed that upon my return to the mats (probably Tuesday, 2 June) I would take it slowly and not roll for a month or so. The Doctor told me to come see him again at the six month mark and sent me on my way.
I cant begin to describe my appreciation for Dr. Kar, Asma, and the entire team who got me thru this. When one hears that they have a hole in their heart the level of fear is paralyzing. They made it so easy to deal with and as I saw with my own eyes, they fixed it.
When I return to the mats next week, it will have been after about five months off. I last trained on Saturday, 10, January. 2009 will go down as a year where I lost half of it to a couple of strokes, the discovery of a hole in my heart, surgery and finally a mid-year triumphant return.
Stay posted, the return of Jiu Jitsu content is imminent!!!
Monday, May 25, 2009
Dinner with the Mighty 6(00,000)
A big thanks to Caleb from The Fightworks Podcast for arranging the first "BJJ Dinner with the Family" on Tuesday 19 May down in Beautiful San Diego http://thefightworkspodcast.com/2009/05/16/bjj-dinner-with-the-family/ .
This was a great opportunity for me to take a short drive (three hours each way) and enjoy the company of and conversation with others who love my sport. We had some great discussions on current topics and everyone at the table helped me to gain some perspective on the situation at my own gym.
Now, there were only six of us there so the running joke was that each of us represented 100,000 listeners. I look forward to being able to do this on a more regular basis.
Thanks again Caleb, thanks to everyone who was there. Hopefully we can all share a roll one day!
This was a great opportunity for me to take a short drive (three hours each way) and enjoy the company of and conversation with others who love my sport. We had some great discussions on current topics and everyone at the table helped me to gain some perspective on the situation at my own gym.
Now, there were only six of us there so the running joke was that each of us represented 100,000 listeners. I look forward to being able to do this on a more regular basis.
Thanks again Caleb, thanks to everyone who was there. Hopefully we can all share a roll one day!
Sunday, May 24, 2009
One Month
Healing Milestone:
Well here we are. It has been one month (30 days) since my PFO closure operation. In many ways it feels like just a few days have passed and in others it feels like it has been so long. This is the first significant milestone in my recovery. This coming Wednesday (27 May) I have my follow-up where the doctors will take a look with an echocardiogram to make sure things are healing as they should. I will make sure to post my results as soon as I hear them.
PFO Migraine Stroke Group:
While I am on the subject of my PFO. Someone who read my blog pointed me in the direction of a new PFO Migraine Stroke group on Facebook http://www.facebook.com/home.php?#/group.php?gid=106434738635 . The group is still small but hopefully it will grow to help people like me who are struggling with the same problem.
Random News:
I am hoping to start a separate blog for just my medical adventures so that when I return to the mats I can return this one back to its Jiu Jitsu focus while still continuing to write about PFO, Stroke and Migraine. I feel that these are issues that are just not discussed enough and It is my mission to help educate, inspire and guide people struggling with the problems that inhibited me for so long. Keep your eyes open for that new blog as my return to the mats draws near. Also, keep your fingers crossed for me as I go into my appointment on Wednesday, optimism is high.
Well here we are. It has been one month (30 days) since my PFO closure operation. In many ways it feels like just a few days have passed and in others it feels like it has been so long. This is the first significant milestone in my recovery. This coming Wednesday (27 May) I have my follow-up where the doctors will take a look with an echocardiogram to make sure things are healing as they should. I will make sure to post my results as soon as I hear them.
PFO Migraine Stroke Group:
While I am on the subject of my PFO. Someone who read my blog pointed me in the direction of a new PFO Migraine Stroke group on Facebook http://www.facebook.com/home.php?#/group.php?gid=106434738635 . The group is still small but hopefully it will grow to help people like me who are struggling with the same problem.
Random News:
I am hoping to start a separate blog for just my medical adventures so that when I return to the mats I can return this one back to its Jiu Jitsu focus while still continuing to write about PFO, Stroke and Migraine. I feel that these are issues that are just not discussed enough and It is my mission to help educate, inspire and guide people struggling with the problems that inhibited me for so long. Keep your eyes open for that new blog as my return to the mats draws near. Also, keep your fingers crossed for me as I go into my appointment on Wednesday, optimism is high.
Wednesday, May 13, 2009
Impatient Patient
Recovery Day: 19
As the title suggests, I can be a bit difficult at times. Most of the time, when it counts, I can be the picture of patience. I can outlast most people even in the most arduous of circumstances. I think that on the whole I have been pretty darn good in dealing with this impossible situation over the last three years; especially in the last six months when it became exponentially worse and kept me from doing many of the things I love.
So, now it has been about 6 months since I have hit the mats. Part of the reason I have been able to keep pressing forward without going completely mental is the fact that I had an enemy to fight. I had suffered a number of small strokes with at least two of them leaving their autographs visible only via MRI. I was suffering with numbness down my right arm and focusing on getting better and finding answers helped to keep me preoccupied and my mind off training.
On 9 March when I had two strokes within 24 hours and found myself in the hospital with a diagnosed problem, a PFO (hole in my heart) I suddenly had a new mission. Time to get it fixed. Once I get that bad boy all patched, all is good. Its back to action. I got my PFO fixed on 24 April 2009, just 43 short days after it was discovered.
Now I have no more battle. No more fight. I am feeling fantastic. There is however a long way between feeling and being. It has only been 19 days since my surgery. This foreign object that has been lodged into my heart has not had much time to settle in and begin get covered over by scar tissue. I am in that precarious spot between feeling awesome and being awesome.
I feel like I could jump right back into what I used to do, or at least back into SOMETHING, but as one of my doctors just confirmed for me....I can't. I am not supposed to do ANYTHING physically exhertive for at least one month following the surgery. Now that makes total sense in my head, but now that I am fighting no other battles and I don't have that to keep me preoccupied or worried, I am dying to get back in action.
I go back to see the Doctor for my one month follow-up on 27 May. At that appointment they will do an echocardiogram and inject some bubbles into my heart so they can see if the hole is sealed properly. Hopefully I will also get the green light to begin to gradually step-up my physical activity level. Cross your collective fingers for me!
Side note: Grappling with Life in Seattle
I am going to Seattle this weekend. My wife and I are taking a short vacation for no good reason other than we need one. We will be the stereotypical tourists doing all the tourist things but we will also be seeing my BELOVED BOSTON RED SOX trample the Mariners at Safeco Field on Friday night. If there are any must see BJJ tourist spots in Seattle, please send me a note!!!
As the title suggests, I can be a bit difficult at times. Most of the time, when it counts, I can be the picture of patience. I can outlast most people even in the most arduous of circumstances. I think that on the whole I have been pretty darn good in dealing with this impossible situation over the last three years; especially in the last six months when it became exponentially worse and kept me from doing many of the things I love.
So, now it has been about 6 months since I have hit the mats. Part of the reason I have been able to keep pressing forward without going completely mental is the fact that I had an enemy to fight. I had suffered a number of small strokes with at least two of them leaving their autographs visible only via MRI. I was suffering with numbness down my right arm and focusing on getting better and finding answers helped to keep me preoccupied and my mind off training.
On 9 March when I had two strokes within 24 hours and found myself in the hospital with a diagnosed problem, a PFO (hole in my heart) I suddenly had a new mission. Time to get it fixed. Once I get that bad boy all patched, all is good. Its back to action. I got my PFO fixed on 24 April 2009, just 43 short days after it was discovered.
Now I have no more battle. No more fight. I am feeling fantastic. There is however a long way between feeling and being. It has only been 19 days since my surgery. This foreign object that has been lodged into my heart has not had much time to settle in and begin get covered over by scar tissue. I am in that precarious spot between feeling awesome and being awesome.
I feel like I could jump right back into what I used to do, or at least back into SOMETHING, but as one of my doctors just confirmed for me....I can't. I am not supposed to do ANYTHING physically exhertive for at least one month following the surgery. Now that makes total sense in my head, but now that I am fighting no other battles and I don't have that to keep me preoccupied or worried, I am dying to get back in action.
I go back to see the Doctor for my one month follow-up on 27 May. At that appointment they will do an echocardiogram and inject some bubbles into my heart so they can see if the hole is sealed properly. Hopefully I will also get the green light to begin to gradually step-up my physical activity level. Cross your collective fingers for me!
Side note: Grappling with Life in Seattle
I am going to Seattle this weekend. My wife and I are taking a short vacation for no good reason other than we need one. We will be the stereotypical tourists doing all the tourist things but we will also be seeing my BELOVED BOSTON RED SOX trample the Mariners at Safeco Field on Friday night. If there are any must see BJJ tourist spots in Seattle, please send me a note!!!
Friday, May 1, 2009
Happy Birthday to Me!!!
Today is my Birthday. Well, not exactly. You won't find any note of it on my driver's license. Its not on my passport; nor is it on my birth certificate. So, as far as any "official" body is concerned technically today is just any other day, but symbolically.....today I am one week old.
The card I carry in my pocket provided by NMT (the company that manufactured the device used to plug the hole in my heart) lists the model number, serial number, lot number and the date....April 24th 2009. One week ago today. So the way I see it today deserves a bit of celebration.
Anyone who has followed my blog for a while, especially those of you who have read this since before I KNEW I HAD A HOLE IN MY HEART (that still freaks me out sometimes) will know that nostalgia is not my strong suit. I wrote about how new years resolutions tend to go by the wayside (http://grappling-with-life.blogspot.com/2009/01/goals-for-2009.html) and that I would rather make goals. So needless to say, I am finding myself struggling to find the proper perspective on this second chance at a normal life.
I don't want to be one of those whacked out people who suddenly sells off all their possessions, moves to a cave and contemplates their navel for the rest of eternity. On the other hand I don't want to be unappreciative either. This is a rather profound event in my life that very likely has saved my life. I feel a great responsibility to get things right, I feel like I need to be a voice for these issues. I feel like I need to be the best me I can be.
It fills my heart to know that this little blog has begun to help already. Some of you may have noticed the "For more information" contact bar that I added off to the right hand side. Shortly after my post about finding my PFO and adding that contact link, two people with conditions mirroring mine contacted me. Both of them had suffered strokes (one of them multiple times like myself), both of them had PFO's recently found and like me both of them were looking for answers. Because of this little blog, I was able to help. One of the two had their PFO closed TODAY by the very same doctor who did mine one week ago!!! I cannot express how good it makes me feel to know that I was able to help someone while on my own path to wellness.
This person never did BJJ, had never read my blog before. I was stumbled upon simply because they were googling the things I had written about. I know they will read this so when they do, I want them to know that I am so happy that they are also on the road to recovery and they better enjoy the journey....Happy Birthday!!!
The card I carry in my pocket provided by NMT (the company that manufactured the device used to plug the hole in my heart) lists the model number, serial number, lot number and the date....April 24th 2009. One week ago today. So the way I see it today deserves a bit of celebration.
Anyone who has followed my blog for a while, especially those of you who have read this since before I KNEW I HAD A HOLE IN MY HEART (that still freaks me out sometimes) will know that nostalgia is not my strong suit. I wrote about how new years resolutions tend to go by the wayside (http://grappling-with-life.blogspot.com/2009/01/goals-for-2009.html) and that I would rather make goals. So needless to say, I am finding myself struggling to find the proper perspective on this second chance at a normal life.
I don't want to be one of those whacked out people who suddenly sells off all their possessions, moves to a cave and contemplates their navel for the rest of eternity. On the other hand I don't want to be unappreciative either. This is a rather profound event in my life that very likely has saved my life. I feel a great responsibility to get things right, I feel like I need to be a voice for these issues. I feel like I need to be the best me I can be.
It fills my heart to know that this little blog has begun to help already. Some of you may have noticed the "For more information" contact bar that I added off to the right hand side. Shortly after my post about finding my PFO and adding that contact link, two people with conditions mirroring mine contacted me. Both of them had suffered strokes (one of them multiple times like myself), both of them had PFO's recently found and like me both of them were looking for answers. Because of this little blog, I was able to help. One of the two had their PFO closed TODAY by the very same doctor who did mine one week ago!!! I cannot express how good it makes me feel to know that I was able to help someone while on my own path to wellness.
This person never did BJJ, had never read my blog before. I was stumbled upon simply because they were googling the things I had written about. I know they will read this so when they do, I want them to know that I am so happy that they are also on the road to recovery and they better enjoy the journey....Happy Birthday!!!
Sunday, April 26, 2009
That Part of my Life is Over!!! The PFO is Closed!!!
Friday was the big day. PFO closure surgery at Cedars Sinai. My wife and I got to Cedars before 0500 in the morning. They told us to be there by 0600 but we did not want to risk being late given the fact that we had to travel south on the 405 freeway on a weekday. Upon our arrival we knew that this experience would be dramatically different than any other medical procedure either of us had ever had.
The staff working the front desk of the south tower that early Friday morning were as welcoming and accommodating as you would expect to find professional concierges in high end hotels. I signed in and upon their urging took a seat in the well appointed waiting room. We waited for about ten minutes until one of the ladies from the front desk called my name along with the name of another guest. As I rose to my feet she came to me instead of me going to the desk. I was assuming that I needed to fill out some of the requisite paperwork; instead she proceeded to walk my wife and I along with the other party to the elevators and all the way to our destination, the 6th floor.
My wait in the 6th floor lobby was not very long. The registration agent at the desk told me that they would probably be calling me back at about 0615; guess what time they called me back....0615. I cannot begin to describe how much I appreciate punctuality and respect for the patients time when in a hospital setting. Having that one thing to count on makes all the difference when one is facing stressful situations.
When they took me back to the prep area, the professionalism continued. This is a well-oiled machine that does not compromise. I will spare everyone all of the details of the prep work they performed with two exceptions: First, there are no clothes under that gown; and Second, the part of you they prepare for the Catheter to be inserted so they can get up to the heart is not in the "leg" like they say....think a bit higher...that's all I will say. If you want any deeper insights please just use the link to the right and email me.
The procedure was simply amazing. I was AWAKE the entire time. After a few minutes the nurses mildly sedated me to take the edge off but I never became less lucid. My thoughts might have been a bit slower but I was still able to be conversant with the surgical team as well as watch the four monitors that showed the surgery progressing. Dr. Kar showed me the Starflex device before he sent it up and into my heart. Simply amazing, and big. He exclaimed upon seeing my PFO on the screen that I had a "Huge" PFO. I replied back that size matters and the surgical team had a bit of a chuckle.
While they were testing atrial chamber pressure using did begin getting a migraine. Dr. Kar told me that this was a relatively common occurrence, that the bubbles traveling thru the PFO and into the brain can cause migraine. They were able to give me medicine intravenously that aborted the migraine as the aura faded. The only downside to me was not being able to see the end of the procedure. There was never a point during the procedure that I felt any discomfort. When Dr. Kar was injecting the contrast dye and anaesthetic into my leg, I felt the needle and the bit of pain from that but nothing else.
I must give a great deal of thanks to everyone who was in the room. All of the doctors and nurses who worked on me during the procedure were so professional, caring and accommodating. Of course I have already raved about Dr. Kar in my previous post. This time I had the pleasure of meeting Dr. Broder as well. Dr. Broder was very friendly and took the time to make sure I understood what was going on. He also acted as my discharge doctor and helped me clear up an issue with my incompetent local pharmacy. Big thanks to Dr. Broder for that. I also met a Dr. Dublin (I hope the spelling is correct), he was in his words "low on the totem pole" with the team but I could tell that given time he will be an outstanding choice for this procedure. Dr. Dublin came into the pre-op room and spent some time with my wife and I explaining how things would go and then after the procedure he went out to the waiting room to tell her that everything went well and brought her back to see me.
They wheeled me back into an ICU / Cardiac Step-Down center where I got my own private room. I had to lie pretty much flat on my back for 6 hours before I was allowed to sit up. Then after a couple more hours a doctor came to remove the sutures from my "leg". They put on a compression bandage and that was it. The only pain was a bit of stinging when the doctor wiped alcohol on the sutures. I had a gaping hole in my leg and a foreign object in my heart, but I was feeling good and in no pain. How cool is that?
I camped out in the room until morning when they did an echocardiogram to make sure the device was in place and holding tight. Then Dr. Broder came in at 10:00 when he said he would, and released me. We headed for home, stopping off to get some real food outside the confines of the hospital.
It's been a couple of days now and I still feel fantastic. I am moving around like I always have. Today I took off the bandages and though the bruising looks bad, the actual incision is pretty minor and I don't think there will be much of a scar. I am on Plavix for three months and asprin for at least six. I am allowed to begin moderate exercise again within the next week or two. I will be allowed to resume BJJ after the three month mark. Sooner if they determine that scar tissue is growing over the device fast enough.
A big bit of thanks to everyone for your support and well wishes. This has been a very long three years of two strokes and three TIA's, heart problems and not having any answers. I am so happy that it seems all of that should be behind me now.
The staff working the front desk of the south tower that early Friday morning were as welcoming and accommodating as you would expect to find professional concierges in high end hotels. I signed in and upon their urging took a seat in the well appointed waiting room. We waited for about ten minutes until one of the ladies from the front desk called my name along with the name of another guest. As I rose to my feet she came to me instead of me going to the desk. I was assuming that I needed to fill out some of the requisite paperwork; instead she proceeded to walk my wife and I along with the other party to the elevators and all the way to our destination, the 6th floor.
My wait in the 6th floor lobby was not very long. The registration agent at the desk told me that they would probably be calling me back at about 0615; guess what time they called me back....0615. I cannot begin to describe how much I appreciate punctuality and respect for the patients time when in a hospital setting. Having that one thing to count on makes all the difference when one is facing stressful situations.
When they took me back to the prep area, the professionalism continued. This is a well-oiled machine that does not compromise. I will spare everyone all of the details of the prep work they performed with two exceptions: First, there are no clothes under that gown; and Second, the part of you they prepare for the Catheter to be inserted so they can get up to the heart is not in the "leg" like they say....think a bit higher...that's all I will say. If you want any deeper insights please just use the link to the right and email me.
The procedure was simply amazing. I was AWAKE the entire time. After a few minutes the nurses mildly sedated me to take the edge off but I never became less lucid. My thoughts might have been a bit slower but I was still able to be conversant with the surgical team as well as watch the four monitors that showed the surgery progressing. Dr. Kar showed me the Starflex device before he sent it up and into my heart. Simply amazing, and big. He exclaimed upon seeing my PFO on the screen that I had a "Huge" PFO. I replied back that size matters and the surgical team had a bit of a chuckle.
While they were testing atrial chamber pressure using did begin getting a migraine. Dr. Kar told me that this was a relatively common occurrence, that the bubbles traveling thru the PFO and into the brain can cause migraine. They were able to give me medicine intravenously that aborted the migraine as the aura faded. The only downside to me was not being able to see the end of the procedure. There was never a point during the procedure that I felt any discomfort. When Dr. Kar was injecting the contrast dye and anaesthetic into my leg, I felt the needle and the bit of pain from that but nothing else.
I must give a great deal of thanks to everyone who was in the room. All of the doctors and nurses who worked on me during the procedure were so professional, caring and accommodating. Of course I have already raved about Dr. Kar in my previous post. This time I had the pleasure of meeting Dr. Broder as well. Dr. Broder was very friendly and took the time to make sure I understood what was going on. He also acted as my discharge doctor and helped me clear up an issue with my incompetent local pharmacy. Big thanks to Dr. Broder for that. I also met a Dr. Dublin (I hope the spelling is correct), he was in his words "low on the totem pole" with the team but I could tell that given time he will be an outstanding choice for this procedure. Dr. Dublin came into the pre-op room and spent some time with my wife and I explaining how things would go and then after the procedure he went out to the waiting room to tell her that everything went well and brought her back to see me.
They wheeled me back into an ICU / Cardiac Step-Down center where I got my own private room. I had to lie pretty much flat on my back for 6 hours before I was allowed to sit up. Then after a couple more hours a doctor came to remove the sutures from my "leg". They put on a compression bandage and that was it. The only pain was a bit of stinging when the doctor wiped alcohol on the sutures. I had a gaping hole in my leg and a foreign object in my heart, but I was feeling good and in no pain. How cool is that?
I camped out in the room until morning when they did an echocardiogram to make sure the device was in place and holding tight. Then Dr. Broder came in at 10:00 when he said he would, and released me. We headed for home, stopping off to get some real food outside the confines of the hospital.
It's been a couple of days now and I still feel fantastic. I am moving around like I always have. Today I took off the bandages and though the bruising looks bad, the actual incision is pretty minor and I don't think there will be much of a scar. I am on Plavix for three months and asprin for at least six. I am allowed to begin moderate exercise again within the next week or two. I will be allowed to resume BJJ after the three month mark. Sooner if they determine that scar tissue is growing over the device fast enough.
A big bit of thanks to everyone for your support and well wishes. This has been a very long three years of two strokes and three TIA's, heart problems and not having any answers. I am so happy that it seems all of that should be behind me now.
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